I know there are a lot of fundraisers out there, but there’s one I’d specifically like you to take a look at. A friend’s little boy is very sick and his family is going to need all the help they can get. I know these people very well and I personally know this is all accurate. No pressure, but I’d like you to take a look and support in any way you can, by donating, sharing or whatever.
Here is the text from the Gofundme site just so you have all the details (thanks in advance for whatever you can do):
Connolly’sFight-AplasticAnemia& MDS by Rich Johnston – GoFundMe
MDS develops in the bone marrow and keeps Connolly’s body from properly producing enough blood cells that function properly. Aplastic Anemia results when the bone marrow produces too few red blood cells, white blood cells (neutrophils (ANC’s)), and platelets. This means the little man has no immune system and can’t fight off illnesses. Connolly’s only chance at a cure is a non-relative bone marrow transplant. Until a bone marrow donor is found, Connolly needs frequent blood and platelet transfusions to maintain his various blood counts.
(MDS is also known as preleukemia or smoldering leukemia. Connolly’s sub-type of MDS is RAEB in transformation (RAEB-t). Which basically means his MDS is very close to developing into Acute Myelogenous Leukemia (AML). AML that has developed after MDS is much harder to cure. Connolly’s ANC’s are so low that it puts his Aplastic Anemia into the sub-type of Very Severe.)
Even before a bone marrow transplant becomes possible, Connolly’s care is highly expensive. Connolly’s family must drive 45 miles each way 1-3 times a week for blood draws, monitoring of his blood levels, transfusions, and central line care. Any time his temperature reaches 100.4, he must be hospitalized. He has already had two lengthy hospital stays, two central line surgeries, and a bone marrow biopsy…not to mention countless emergency room visits. Connolly’s family tried to bear this all themselves, not wanting to burden anyone else. However, they’re swamped.
Expense will only increase when Connolly is lucky enough to find a bone marrow donor. The transplant is complicated because his bone marrow is essentially hollow due to the Aplastic Anemia. If his condition worsens, the transplant team at the University of Nebraska Medical Center may no longer be able to help and he would have to be transferred to a hospital that can handle his level of sickness. This would likely be Boston, requiring a minimum stay of at least 4-6 months and a cross-country move, magnifying the expenses even further.
As a dear friend of the family, I love their children as my own. Connolly’s parents don’t want to burden others, but they just can’t do this alone. I want to help take some of the financial burden and worry away. For this reason, I have created this site. All money donated will go to the cost of insurance co-pays, premiums and other items not covered by insurance, medicine, the endless trips to and from the hospital, meals, time Connolly’s parents can’t work, cab fare, the upcoming transplant, the possible temporary move of the family to Boston, and the other related expenses that may come up.
I thank each and every one of you for taking the time to read this and considering helping Connolly and his family. I will regularly provide updates on Connolly’s condition. Any support you can provide, even just sharing this page, is greatly appreciated.
You can follow Connolly on his Facebook page Connolly’s Diagnosed Journey .
I also encourage people to check out Be The Match at this link http://bethematch.org/ to see if they are a match for a desperately needed bone marrow transplant. There are never enough donors and you can save a life.